Our Mission:

The Breathe Support Networks mission is to provide support and education for pulmonary fibrosis patients and their families, helping them to better #LIVEwithPF. This includes, but is not limited to:

– peer-to-peer support for those diagnosed with pulmonary fibrosis as well as their caregiver and loved ones
– education about pulmonary fibrosis
– guiding patients and families on how to talk to their healthcare team
– providing tips to live a healthier more productive life
– providing information about other pulmonary fibrosis resources

Check out our trusted research partners below:

Vicore is establishing a portfolio in rare lung diseases including idiopathic pulmonary fibrosis (IPF) and pulmonary arterial hypertension (PAH). C21 is a first-in-class orally available small molecule angiotensin II type 2 receptor agonist (ATRAG).

Almee™ (an investigational medical device in clinical development) is a digital therapeutic (DTx) based on cognitive behavioral therapy (CBT) created to address the psychological impact of living with pulmonary fibrosis.

Inhaled IMID is a new formulation and delivery route of thalidomide targeting the severe cough associated with IPF.

With our unique expertise in the ATRAG biology we fuel our pipeline with several new assets with long patent life for a variety of diseases, some of which could be partnered while others can be taken to the market by Vicore.

Leapcure is a global team of thought leaders who elevate patient interactions to progress research for all. We do this with a purposeful, brave culture that deeply connects to each of our personal values.

Through innovative technology and empathetic conversations, our impact is limitless.

We built Leapcure to empower advocacy groups with a technology that can maximize their impact on research. We uncovered more from this, how there are important problems to solve across the way we plan and execute research from a behavioral perspective. We’ve come to realize how we can improve patient outcomes when we listen to study teams, physicians, and sponsors too – and we can help our stakeholders across the industry when we can align on innovations that matter most to patients.

We have partnered with Rare Patient Voice to bring you paid opportunities for pulmonary fibrosis studies in the US, Australia, Canada, France, Germany, Italy, New Zealand, Spain, and the UK.

Rare Patient Voice has been offering study opportunities to PF patients and caregivers for many years and has been used by many in the PF community. You can feel safe participating in these studies.

Below is a link to sign up for their compensated study opportunities. This link will send you to a questionnaire you will fill out. Once you’re potentially matched with a study, you’ll receive an email link to apply. This is an ongoing program and you’ll receive ongoing email as you are potentially matched.

https://rarepatientvoice.com/breathesupport/

At Pillar Patient Advocates we understand our clients not only find themselves immersed in the fear and overwhelm of their diagnosis, but also the confusion and frustration that comes with today’s complicated health care system.

It’s our job (and mission) to bring clarity and control back into our client’s hands.

Whether it’s the mounds of pre-approvals, bills and consent forms or the feeling of being pushed from appointment to appointment without anybody making sure you understand what is happening to you, we can help.

Going one step further into our work to serve and improve the patient’s experience, we are proud of our efforts in the market research arena where we are able to include the patient opinion and insights in designing the future of health care.

Whether it be through our services as patient advocates or being paid for sharing their important stories, Pillar Patient Advocates supports our families during their healthcare journey.

To look for research studies, surveys, and clinical trials we are advertising, please join our support groups by using the links at www.breathesupport.org/support-groups/ (or look there if you are already a group member). We regularly post for these partners.

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